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Lauren P.

"You are your home." Halfway through my eighth grade year I was at the peak of my distance running career, leading my middle school cross country team and placing first overall in some meets. That's…

July 20, 2016

Heather H.

My name is Heather, and I was diagnosed with CF when I was 3-months-old – at a time when doctors did not think I would live to kindergarten. Boy did I prove those doctors wrong.…

March 14, 2016

Kristal

“We don’t know how strong we are until being strong is the only choice we have.” Hi! My name is Kristal, and I was diagnosed with cystic fibrois when I was only 8-months old. I…

February 8, 2016

John O'Neill

“Life expectancy is just a number – and I always try to prove the doctors wrong.” From the time I was young, I knew that a double lung transplant was a part of my future…

March 27, 2014

Erin

“Just when the caterpillar thought the world was over, she became a butterfly.” After years of unexplained illness, I was diagnosed with a primary immunodeficiency, a genetic disorder that prohibits my body from producing normal…

August 21, 2013

Mark

In 2008, I was in a serious motorcycle accident that was supposed to leave me extremely disabled. Instead of crawling into a pit of despair, I decided that doctors would not dictate my future. I…

August 7, 2013

Maria

“A clear conscience makes for a soft pillow.” For several years, my husband and I tried to have another baby, and experienced many disappointments during that time. With every disappointment came the urge to give…

August 5, 2013

Paul

My childhood was never easy. I tested positive for cystic fibrosis at just 6 weeks old, and the complications grew from there. I have been in and out of the hospital my entire life, and…

June 6, 2013

Mac

I have gone through difficult times, as does anyone who has cystic fibrosis. In 2007, I was placed on a ventilator because I was going into respiratory failure. Eventually, I received a new pair of…

April 9, 2013

Lucas

“I will still continue to fight until my last breathe; I believe I have a job to do in this world, and until I reach the end, I have to keep trying.” I was born…

March 11, 2013

Joni

“Life is precious… enjoy every moment.” My sister and I were both skinny and often sick little girls growing up, and were not diagnosed with cystic fibrosis until late in life. Unfortunately, my sister lost…

March 11, 2013

Stefan

“Focus on the journey, not the destination.” Life with cystic fibrosis is like an adventurous journey, one that I have chosen to embark upon with friends surrounding me. I have always believed that it is…

March 11, 2013

Chad

Life is all about the journey – not necessarily about the start, but about the path to the end. When my journey is ending, I know that I will be able to look back and…

March 11, 2013

Dottie

“To truly live fully, we must do the things we believe we cannot.” The idea of a journey is a beautiful one. The word itself suggests a lengthy amount of time – something a person…

February 25, 2013

Kate

“Every day is a journey filled with twists and turns. Every day, if you smile, you will feel alive.” ― Santosh Kalwar The journey for me in life and with Cystic Fibrosis is one of…

February 25, 2013