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My name is Heather, and I was diagnosed with CF when I was 3-months-old – at a time when doctors did not think I would live to kindergarten. Boy did I prove those doctors wrong. While I have hit some bumps along the way, I am in my 30s living a relatively normal life – for someone with CF that is. I went through the doctors visits, countless IVs, a power port, and now being listed for a double lung transplant. Having my friends and family around me has made the journey much easier, but there are still times when it is really tough. Take a moment to think about only ¼ of your lungs working can you image it? I live with it every day, and some days I may not even have that much lung function. I have to fight every day for the breath that I breathe. Although I go through this every day, it hasn’t stopped me from being who I am. Despite having 25% lung function, I feel more alive than I have ever been in my life, whether it’s a quiet day inside or doing cannonballs into the pool with my niece and nephew, this disease will never hold me back. It might slow me down but giving up is not an option. For I am a fighter.

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