Coaching Pole Vault is My Passion – and Has Nothing to do with Cystic Fibrosis
I grew up playing sports with my brothers – anything they did, I followed them and tried it out. Unfortunately – and
Life is great: I am eight years post-transplant
Eight years ago, today, I was granted the gift of life – I was saved with a bilateral lung transplant. April 18th
Quarantine Life
Quarantine. Social distancing. Isolation. These words are very familiar to those of us living with chronic illnesses. I am 63-years-old, eight years
The Emotional Rollercoaster Ride of Transplant “Dry Runs”
The Emotional Rollercoaster Ride of Transplant “Dry Runs” To sum it up: dry runs are devastating If you are reading my blog,
Aging Out of the ‘Life Expectancy’ for Someone Living with Cystic Fibrosis
Aging Out of the ‘Life Expectancy’ for Someone Living with Cystic Fibrosis Have you ever had a doctor tell you how long
Seven Years Post-Transplant
Seven Years Post-Transplant Seven years ago, on April 18, I received a new set of lungs from my donor, Chris. He gave
7 Year Post Transplant Plunge
This year to honor my lung transplant donor, Chris, I decided to do something spontaneous and fun. April 18th marked the 7
Life is All About Options
No matter who you are, your life is full of options. Remember that. It’s crucial, for without options, we lose hope. I
Bike 2 Breathe Crew Audio Podcast
In this installment of Jerry Unplugged: A Cystic Fibrosis Podcast, Jerry sits down with Chris McEwan and Mike Hill from
Storm Johnson - Double Lung Transplant Podcast
In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double
Don't Dream IT, Be IT
We all have hopes and dreams, but too many of us never accomplish them. Why? Fear, procrastination, health problems – there are
No Control
Life is not a controlled experience whether you have a chronic disease like CF or not. But, as human beings, we desperately
Being "Normal"
When I was a child, I was embarrassed for anyone to know I had cystic fibrosis. I just wanted to be
Cycling with CF and the People You Meet Along the Way
I’m 61 from Brooklyn, New York and I’m a cyclist, a double lung transplant recipient and I also happen to have cystic
Life is Not a Sprint, It’s a Marathon…
When living with cystic fibrosis, knowing your mutation is key, but it doesn’t have to be the sole focus of living your