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Seven Years Post-Transplant

Seven Years Post-Transplant Seven years ago, on April 18, I received a new set of lungs from my donor, Chris. He gave me a new lease on life that I can never hope to repay.…

April 18, 2019

Life is All About Options

No matter who you are, your life is full of options. Remember that. It’s crucial, for without options, we lose hope. I talk a lot in my podcasts, blogs, and social media posts about running…

August 7, 2018

Tenacity

Tenacity: the “mental or moral strength to resist opposition, danger, or hardship” (http://www.merriam-webster.com). Or in my own words, tenacity is plain old stubbornness and the refusal to give up. I grew up with this attitude…

July 25, 2018

Bike 2 Breathe Crew Audio Podcast

    In this installment of Jerry Unplugged: A Cystic Fibrosis Podcast, Jerry sits down with Chris McEwan and Mike Hill from the Boomer Esiason Foundation as they prepare and plan for Bike 2 Breathe…

July 18, 2018

Storm Johnson - Double Lung Transplant Podcast

  In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double lung transplant at Duke. Before his transplant, Storm’s lung function dropped to 8%.…

July 10, 2018

Don't Dream IT, Be IT

We all have hopes and dreams, but too many of us never accomplish them.  Why?  Fear, procrastination, health problems – there are all sorts of reasons why.  However, you can realize your dreams or at…

June 27, 2018

No Control

Life is not a controlled experience whether you have a chronic disease like CF or not. But, as human beings, we desperately try to control all aspects of our lives. This is as true for…

June 20, 2018

Being "Normal"

  When I was a child, I was embarrassed for anyone to know I had cystic fibrosis. I just wanted to be like everyone else. For me, that meant hiding my CF. I didn’t focus…

June 5, 2018

Cycling with CF and the People You Meet Along the Way

I’m 61 from Brooklyn, New York and I’m a cyclist, a double lung transplant recipient and I also happen to have cystic fibrosis (CF). CF is a genetic disease that affects the lungs, digestive system…

May 29, 2018

Life is Not a Sprint, It’s a Marathon…

When living with cystic fibrosis, knowing your mutation is key, but it doesn’t have to be the sole focus of living your life. In fact, it absolutely should not be. If you’re lucky enough to…

May 22, 2018

Heroes

    According to Miriam Webster dictionary, the simple definition of a hero is “a person who is admired for great or brave acts or fine qualities; and a person who is greatly admired.” This…

May 15, 2018

Lions and Tigers and Cancer, OH MY!

  In The Wizard of Oz, Dorothy and her companions faced a dangerous journey down the yellow brick road… just as people with cystic fibrosis face obstacles every single day. Instead of lions, and tigers, and…

May 1, 2018

Dealing with Death

Death. Not exactly a topic to liven up a dinner party. But, people with cystic fibrosis face it and learn to deal with it at an early age. You know, I’d go in the hospital…

April 24, 2018

A Letter to my Donor

Six years ago, on April 18, 2012 I received the ultimate gift – a healthy set of lungs.     This is my transplant story and finally, an open letter to my donor Chris who gave…

April 16, 2018