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Erin

“Just when the caterpillar thought the world was over, she became a butterfly.” After years of unexplained illness, I was diagnosed with a primary immunodeficiency, a genetic disorder that prohibits my body from producing normal…

August 21, 2013

Kathy

As I got older, I found myself struggling with more and more CF-related health issues. From lengthy hospital stays to being on oxygen 24/7 to having to leave my job and go on disability –…

August 21, 2013

Alison

“Strength does not come from a physical capacity; it comes from an indomitable will.” Ghandi I was born with cystic fibrosis, but blessed with athleticism and was constantly running, jumping, and cartwheeling around my home.…

August 7, 2013

Frank

“Don’t aspire to make a living. Aspire to make a difference.” To this day, I am amazed by the strength of my daughter while she was losing her battle to cystic fibrosis. Before she left…

August 7, 2013

Frank

My first two children were born with cystic fibrosis – and I was scared. How could I be a father, a provider, and a loving husband with the possibility of my children’s deaths knocking on…

August 7, 2013

Mark

In 2008, I was in a serious motorcycle accident that was supposed to leave me extremely disabled. Instead of crawling into a pit of despair, I decided that doctors would not dictate my future. I…

August 7, 2013

Maria

“A clear conscience makes for a soft pillow.” For several years, my husband and I tried to have another baby, and experienced many disappointments during that time. With every disappointment came the urge to give…

August 5, 2013

Kellie

“When life gets tough, I get tougher.” Living with cystic fibrosis has been a blessing in disguise; it has made me the fighter I am today. I have learned to never give up, and that…

June 13, 2013

Paul

My childhood was never easy. I tested positive for cystic fibrosis at just 6 weeks old, and the complications grew from there. I have been in and out of the hospital my entire life, and…

June 6, 2013

Ignasi

“Smooth seas do not make skillful sailors.” African proverb I live in Spain – and my goal is to encourage others with CF to exercise daily to protect and promote their health. After dealing with…

June 6, 2013

Julie

I am one of the crazy CF mamas. A misfit caregiver with a passion for getting it right. A rebel CF mama who questions doctor’s orders, and evaluates the outcomes. I am a CF mama…

June 6, 2013

Kayla

“Dream as if you’ll live forever; live as if you’ll die today.” Cystic Fibrosis has taught me to live life and truly see the beauty of the gift I receive every morning when I wake…

June 6, 2013

Macaela

I am eighteen. I have cystic fibrosis. And I am going to college to achieve my goals. While CF has given me an extra set of obstacles to overcome, it has taught me to work…

June 6, 2013

Haley

“I cannot fail. And I WILL be the hero of my own story.” For months, I have been feeling under the weather even though I have remained active by starting a Cross Fit boot camp.…

June 3, 2013

Owen

Always be an inspiration, because without inspiration, no one would be where they are today. Conquer your shortcomings and stay strong! I was not diagnosed with CF until I was 14 and, by that time,…

May 8, 2013

Latisha

“It ain’t about how hard you hit, it’s about how hard you can get hit and keep moving forward; how much you can take and keep moving forward. That’s how winning is done!” – Rocky…

May 3, 2013