Title: Danny Ferrone – The Power of Exercise & CF

Danny Ferrone, 26 years old with cystic fibrosis, living in Illinois and competing in triathlons. Danny is going to school to be a fitness instructor, founder of Fight Forever Foundation in 2006(www.fightforever.org), and living, breathing, succeeding with CF.

-    Danny grew up playing baseball, soccer, football, BMX biking, and basketball. “My parents believed in keeping me active”, states Danny.

-    “I returned to school to be a fitness instructor so I can do what I love in life and stay healthy…”

-    Besides vigorous exercise, Danny believes in good nutrition as part of his programs to stay healthy. “I eat a lot of fish, pasta, fruit, veggies, and try and stay away from dairy”, states Danny.

-    Danny likes variety in exercise training so also added swimming, yoga, and boxing (mixed martial arts) to his training routine. Danny has competed in 4 marathons (best time 4hours 18minutes) and 4 triathlons, including a Half Ironman.

-    The biggest Danny faces related to exercising and CF is “dehydration” but his secret is a lot of water, electrolytes, and drinking salt water.

-    “Exercising with CF can be uncomfortable but throw yourself into it and be HONEST with yourself… you will feel better”, states Danny.

-    Danny’s recommendation to others with CF; “Challenge yourself, keep pushing, and remember you are not alone – fight hard…”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 12th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Title: CFRI Teen & Adult Retreat: August 3rd – 9th 2010

Maggie Sheehan, 22 years old with cystic fibrosis, talks about her great experiences attending the CFRI Retreat in Northern California. The retreat takes place off the beaten path under the “redwoods” on 10 minutes from Stanford Hospital.  CFRI is a great organization that empowers the CF Community to attain the highest possible quality of life.

-    The CFRI Retreat has been in existence since the 1990’s. Maggie has been attending for the retreat for 5 years and scholarships are available

-    “Activities at retreat include; rap sessions, arts & crafts, sporting events, fun in the sun, and great food!” states Maggie.

-    To attend the retreat you must be over 15 years old with guardian and over 18 years old by yourself. Friends and significant others are welcome to attend and join in the fun.

-    The retreat is a very safe environment that follows strict guidelines regarding cross infection. Maggie feels that the retreat is “ safer than the real world”.

-    “My favorite part of the retreat is the sharing and the talent show at the end of the week” states Maggie.

-    Maggie continues to return to the retreat because of the great friends she makes and the awesome connection to the CF community.

-    Maggie feels refreshed at the end of the retreat.

-    For more info on the retreat call: 650-404-9975

-    Email: cfri@CFRI.org

-    Website: www.CFRI.org

Title: Episode #0090 Fundraising For A Cure

Gwen Shusterman discusses various ideas on FUNDRAISING for a cause.
This year Team Boomer – Fighting Cystic Fibrosis will have over 100 runners competing in the

ING New York City Marathon - ALL will be running and fundraising for a cause…

Team Boomer – Fighting Cystic Fibrosis was set up through the Boomer Esiason Foundation to

help raise funds for the fight against cystic fibrosis and raise awareness to the importance of

exercise for people with CF.

Team Boomer’s goal is to improve the “quality of life” and “lifespan” of individuals with CF

through the power of “daily exercise”. As therapeutic developments increase the lifespan of CF

patients so does the need for further education in the area of exercise.


-    Gwen believes there is no secret to fundraising; “It’s an art and partly as science…

fundraising is personal so you have to do it in your own style”.

-    “Come up with a game plan: First think of a target number and then think of

EVERYONE you know who you can possibly approach,” states Gwen.

-    Think outside the box… “People are going to surprise you. All those people I said to

put on the list – the acquaintances, your kid’s friend’s parents, an old boyfriend/girlfriend, the

person you met at a conference last month – they all add up” states Gwen.

-    Once you have your list together the next step is setting up a First Giving page:

www.firstgiving.com/TeamBoomer.

-    “Next take your list and send out an email blast with your fundraising page info to ALL

your contacts” states Gwen.

-    Other ideas for fundraising include special events such as happy hour at a local bar,

golf events, school events, and many companies have “matching gift” programs.

-    Why Can’t I tell people what my minimum is? “Really, if you entered this kind of event

(marathon) then I doubt you’re the kind of person who just settles on the minimum” states Gwen

-    A lot of work? “If you mean does fundraising take time – yes it does! To be successful

you have to personalize your story and it’s really important to start early!” states Gwen.

-    Final thoughts… “I think anyone who is willing to do something like join TEAM BOOMER

is amazing. It takes a special person to make this kind of commitment. Use your passion. Good

luck!

Title: Jerry Cahill – It’s Not About CF
Jerry Cahill, 53 years old with cystic fibrosis, living in Brooklyn, NY. Jerry is exercising with oxygen to keep his lungs clear, coaching, and volunteering at the Boomer Esiason Foundation as he awaits a double lung transplant. Jerry attacks the day and is living, breathing, and succeeding with CF.
-    Jerry was diagnosed at age 10 and the doctors told his parents he would not make it to his 16th birthday.
-    “Growing up with CF is challenging but you just have to push through…  it’s a discipline,” states Jerry.
-    Jerry loves being outdoors all year and exercises with a small oxygen tank, which helps Jerry breathe better while he awaits a double lung transplant.
-    “I believe in a complete program of being compliant to medications, good nutrition, exercise, and a fun social life,” states Jerry.
-    “Going out on disability is tough but you just have to RE-INVENT yourself,” states Jerry
-    Jerry believes in “attacking the day and focus on living! I look forward to tomorrow and the next day, next week, and next year…”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 11th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Title: Episode #0088 Walks on the Beach With Angie: A Father’s Story of Love by Don Warner

Walks on the Beach with Angie: A Father’s Story of Love describes Don’s relationship with his beloved daughter, Angela, who had cystic fibrosis. Don Warner and his wife, Linda, did everything they could to give their only child immeasurable love and the fullest life possible, all the while carrying out an aggressive treatment regimen to fight her fatal disease.

-    Angela was diagnosed at 3 months of age and recalls how alarming & frightening the information on CF was at the library.

-    “Angie was an active child and a normal high school kid very involved in cheerleading,” states Don.

-    During the final 86 days of her life, as Angie lay in the intensive care unit on a ventilator, the Warner’s were surrounded by love ones. The grief and loss that Don and his wife experience prompted him to write the book and create a lasting legacy in her honor.

-    Angela loved vacationing with the family in Laguna Beach, taking walks on the beach at night star gazing, and having great conversations about life.

-    Don Warner’s advice to CF patients and their families; “keep fighting everyday”.

-    Don Warner’s recommendations to others that experience the loss of a child from a fatal disease; “whatever pain you are feeling it’s ok, surround yourself with loved ones, and have faith & hope that you will re-unite someday”.

-    For more information go to: www.angelawarnerfoundation.org

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 10th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Title: Episode #0087 Dan Palumbo – Gearing Up for Disability with CF

Dan Palumbo, 53 years old with cystic fibrosis, grew up in Wilkes-Barre, Pennsylvania, married and the proud father of twins that are both in law school. Dan has his own advertising agency but due to the progression of CF is considering disability so he can spend more time taking care of his health. Dan, at age 53, is living, breathing, succeeding with CF.

-    Dan was diagnosed at 1month of age in Wilkes-Barre, PA.

-    Graduated college with a degree in communications and advertising, Dan worked at a local TV station before opening up his own advertising agency in 1980.

-    “I stay very compliant and manage my health because I have goals and dreams and I want to achieve things”, states Dan.

-    Dan is considering disability because, at age 53, it is getting tougher to get through the day with all the treatments and a full-time job.

-    “Disability maybe my only choice if I want to stay alive and watch my son and daughter start a family – I want to be a grandfather”, states Dan Palumbo.

-    Dan’s biggest fear about disability is the loss of a lot of his business relationships/friends but feels his health is more important at this point in time.

-    “I am a published song writer and I will exercise more and do more treatments once I go out on disability… it’s all about MORE treatments to stay healthy with CF”, states Dan.


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 9th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.