54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
CF Podcast 160: Callie Deanda Jumping the Fear With CF

CF Podcast: Callie Deanda

Name: “Jumping the Fear with CF

Sponsor: Genentech

 

Callie Deanda,: 

  • 20 years old with CF, athletic, attending college, and from Tennesse
  • Hobbies include soccer (plays on varsity team), hiking, cross-stitching
  • Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan
  • Callie believes that we all need to “jump the fear” with CF.you never know what’s going to happen in life… big fear of the unknown things just happen so ENJOY!
  • Family “24 hour rule” get over things in life and move forward…
  • Callie and her family believe you should not get stuck in CF.
  • CF opens doors!
  • Callie loves life and always finds joy in life
  • Callie’s advice… “We all need people in life, we cannot do on our own

 

This podcast was made possible from an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Callie_Deanda_Interview.mp3
Category:podcasts -- posted at: 12:34pm EDT

CF Podcast 153: Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

Jen Eisenmann Show Notes

 

CF Podcast 153: CF, Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

 Today we meet Jen Eisenmann, a 44-year-old living, breathing, and succeeding with cystic fibrosis. Diagnosed at 12 months old, Jen grew up similarly to most other kids, other than having to take enzymes and do occasional chest percussions. Because her parents had never heard of cystic fibrosis, they were wary of her participation in athletics, and so directed her in the direction of music as an extracurricular activity.

*      At 22 years old, Jen visited a CF clinic for the first time.

*      She had, admittedly, been naïve about the seriousness of CF and the need to care for herself.

*      Her new doctors told her she had to change her ways to survive.

 Listen in to the latest CF podcast to hear Jen’s entire story.

 This CF Podcast was made possible through an unrestricted, education grant from Genentech to the Boomer Esiason Foundation.

Direct download: Jen_Eisenmann_mixdown.mp3
Category:podcasts -- posted at: 5:15pm EDT

CF Podcast 152: Amy Whelan Interview - Anxiety with Cystic Fibrosis

CF Podcast 152: Anxiety with Cystic Fibrosis

 

Today, you will meet Amy Whelan, a 21 year old from Dublin, Ireland. She was diagnosed at two weeks old, when her identical twin was extremely ill.

*      Amy is studying anthropology and sociology in college.

     She enjoys reading, writing, and watching movies.

*      Growing up, she did not have to do as many lung-based treatments. Now she has had to adjust to adding those treatments to her medical regime.

 

 

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: whelan_mixdown.mp3
Category:podcasts -- posted at: 1:01pm EDT

CF Podcast 151: Jessie Ennis Interview - Self Management and Pursuing Goals with Cystic Fibrosis

CF Podcast 151: Self Management and Pursuing Goals with Cystic Fibrosis

 

Today we meet Jessie Ennis, a 22 year old with CF who was born and raised in Dublin, Ireland. Because of a family history of the disease, Jessie's parents had her tested for CF before she was six weeks of age. In spite of CF, she had a relatively normal childhood - growing up with her brother and a series of foster kids - and remained healthy through high school. 

 

Now Jessie: 

 

  • studies health and society in college,
  • is currently visiting and working a summer job in San Diego,
  • and has taken up surfing and skiing. 

To learn more about Jessie and the ways she manages her disease while pursuing her goals, please listen to her podcast here [insert link]. 

 

 

This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ennis_mixdown.mp3
Category:podcasts -- posted at: 8:00am EDT

“Comfort With Your Feeding Tube”

The fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a pretty noticeable device. I think the social hurdle was really the biggest one that I had to overcome. With that being said, once I realized the benefits of the feeding tube, especially in my life, it was an easy hurdle to get passed. Here, the message is that I really want you to own it. What is it? The feeding tube. If the feeding helping make your life easier, then don’t worry about what it looks like. You never know where it will lead you.

Direct download: Own_Your_Feeding_Tube_-_Gunnar_Esiason_-_Episode_4.mp4
Category:podcasts -- posted at: 3:00pm EDT

CF Podcast 150: Sean Sullivan, Being Compliant With Cystic Fibrosis

CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis

 

Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF.

ï      He grew up extremely active – playing basketball, baseball, and swimming.

ï      His doctors encouraged his parents to treat him the same as their other children.

ï      From a young age, he learned to be not only medically compliant but also stick to an active lifestyle.

ï      Now 6 months post transplant, Sean is even more vigilant than ever while taking care of his disease and its new challenges.

 

 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: sullivan_mixdown.mp3
Category:podcasts -- posted at: 10:33am EDT

CF Podcast 149: Exercising with Cystic Fibrosis - Featuring Jillian McNulty

CF Podcast 149: Exercising with Cystic Fibrosis featuring Jillian McNulty

 

Today, we meet Jillian McNulty, a 38 year old woman living, breathing, and succeeding with cystic fibrosis in Ireland. Growing up as one of four kids, she is outgoing and constantly challenges herself to stay on top of her disease. 

- During her childhood, Jillian was never hospitalized for an extended length of time. 

- In her early thirties, Jillian's health started to decline, and so she made the decision to push herself with exercise. 

- After seeing an ad for a marathon while she is in the hospital, Jillian decided to sign up and start training. 

- Since then, she continues to push herself by running, walking, and cycling on a regular basis and by competing in races. 

 

 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Direct download: McNulty_mixdown.mp3
Category:podcasts -- posted at: 12:54pm EDT

CF Podcast 148: Never Giving Up with CF - Featuring Chris Peacock

CF Podcast 148: Never Giving Up with CF

 

Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends. 

- Chris suffered a collapsed lung in 2011. 

- He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day.

- Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all. 

- Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down. 

 

 

This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ChrisPeacock.mp3
Category:podcasts -- posted at: 3:00pm EDT

CF Podcast 147: Managing a Career with Cystic Fibrosis - Featuring Johnny Simpson

Jonny Simpson

Managing a Career with Cystic Fibrosis

 

Today, you will meet Jonny Simpson, who is living, breathing, and succeeding with cystic fibrosis. 

- 28 years old

- From Penrith, Cumbria, UK

- His hobbies include bodybuilding, literature, and music.

- He is one of four boys. 

- He works in sports marketing and also personal training. 

 

 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: johnnysimpson.mp3
Category:podcasts -- posted at: 1:00pm EDT

CF Podcast 146: Cystic Fibrosis and the Feeding Tube - Featuring Gary Reay

Meet Gary Reay - a 26 year old who grew up in Ireland with cystic fibrosis. 

 

- He plays soccer and boxes - generally trying to get to the gym at least 4 days a week with his friends - and also loves music and DJing. 

 

- After 19 years without an extended stay at the doctor's, Gary fell ill and was hospitalized for 6 weeks. 

- During that time, he lost a great deal of weight - leading him to the decision to get a feeding tube. 

 

- He uses his feeding tube every night and has seen a major change in his ability to retain weight and has much higher energy levels. 

 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Direct download: GaryReay_FeedingTube.mp3
Category:podcasts -- posted at: 12:35pm EDT

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