Fri, 19 January 2007
Beth Sufian Podcast Show notes
Title: New Challenges in Obtaining & Maintaining Health Insurance
Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.
Tue, 9 January 2007
Title: With Every Breath – stories about people living with cystic fibrosis.
Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherine’s book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.
This book is very inspirational and educational for all involved in the world of cystic fibrosis.
Category:general -- posted at: 1:22pm EDT